Domain: tiger-web1.srvr.media3.us OT Medical folks - vasovagal syncope | Page 3 | O-T Lounge
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re: OT Medical folks - vasovagal syncope

Posted on 2/8/14 at 11:17 am to
Posted by proger
Member since Nov 2007
740 posts
Posted on 2/8/14 at 11:17 am to
quote:

I work at ochsner and we put loop recorders in more people, especially healthy teenagers, than you might think. Drs Patricia Thomas and Scott macicek (sp.) are the pediatric electrophysiology doctors and are great. I work with them a good bit and would take my child to see them of I had the same problem.


I know them both. Great docs. I would recommend them or Dr. Abi-Samra
Posted by magicman534
The dirty dell
Member since May 2011
1836 posts
Posted on 2/9/14 at 5:41 pm to
Yeah, I didn't put abi samra in there cause I didn't know if he did pediatrics
Posted by Hammertime
Will trade dowsing rod for titties
Member since Jan 2012
43031 posts
Posted on 2/9/14 at 6:06 pm to
quote:

Absense seuzures are amazing.... almost looks like they are day dreaming sometimes with no other symptoms
I have been told I have these, and am completely aware of what is happening when it goes on. I can drive and hear everything going on in a conversation. Talking and moving my eyes/face is a different story. Weird stuff. It is like day dreaming times 10.

OP, I had to wear that monitor for two days, and nothing big showed up. I also did the sleep deprived test, but it didn't do anything because I only sleep two or three hours a night. I have had probably 5 MRIs, and the most that has come from anything was "some abnormalities". I have had a few flat out seizures, and have ongoing symptoms still. I went through 4 different highly recommended doctors before I settled on one. They all just told me, "I don't know why it happens". Drove me nuts because I know there is always a reason for something to happen


In the end, I am almost positive I figured out why my seizures started and what triggers them. The doctors had no idea, and I got it on my own by the process of elimination. After I came up with the causes, the current doctor ran some tests confirming it. It took around 5 years for me to figure it out. The doctors were comfortable saying they didn't know why, I was not.


Point being....Do not settle for something. Do not settle for an "I dunno". There are reasons the body does things and push hard until you find them.


Eta: My neurologist is Dr. Piotr Olejniczak. He is in the LSU medical building across from Superior(mexican) on St Charles. I have been through a couple, and he has been the best.
This post was edited on 2/9/14 at 6:19 pm
Posted by TigerWave22
Prairieville
Member since May 2012
180 posts
Posted on 2/9/14 at 6:12 pm to
My sister and I both dealt with this when we were in highschool. Her episodes began a couple years before mine but we would experience it mostly after dance performances during half time. I'm 24 now and I maybe have one episode every 6 months or so. Last time it happened was in church (pretty embarrassing!) but I can typically feel when it's about to happen. My vision will get a little spotty and I'll know I need to sit down. After that, ears will begin to ring and I'll typically pass out shortly after. I hope it's something she grows out of! Something that may help is to tell her to take her time going from a laying down - sitting up- standing position. Good luck to her
Posted by k wilk
Member since Nov 2008
670 posts
Posted on 2/9/14 at 6:23 pm to
My wife has been diagnosed with hypoglycemia and vaso depressor syncope. Prior to her syncope diagnosis, she would pass out from time to time, and she thought it was because of the blood sugar. Looking back, it was the syncope causing her to pass out. She started taking atenolol several years ago and hasn't passed out since then.

However, she started having episodes about a month ago where she would feel like she was about to pass out. She just wore a heart monitor for a week, and everything turned out to be normal (heart rate, rhythm, blood pressure, etc). Doc thinks she is stressed to the point it is making her almost hyperventilate, thus causing the feeling of passing out.
Posted by lsubandmom
Houston/Lafayette
Member since Oct 2007
902 posts
Posted on 2/9/14 at 7:29 pm to
A friend of mine just suggested that it might be an electrolyte imbalance and for you to try having her take pedialyte over the next week. He had a friend with similar symptoms and after the pedialyte, she didn't have anymore problems. Pretty simple and seems like it would be worth a try.
Posted by moneyg
Member since Jun 2006
62551 posts
Posted on 2/9/14 at 8:22 pm to
quote:

teenage daughter started having episodes of passing out at school this week. started Wednesday and took her to the ER. They hooked her up to EKG and ran some blood work. No obvious causes. Follow up with neurology on Thursday and cardiology on Friday yielded nothing significant. They did an echocardiogram in cardiology and everything is normal. She is an athlete and is in good physical condition. Her diet is not the best in the world but is pretty similar to mine at that age.



Very common. Mild anxiety causes the basic symptoms and those who are prone to vasovagal response basically turn a minor thing into a major one.

I had the issue at a much later age. I never passed out, but I felt lightheaded and it would get worse as I focused on it. My nephew (about the same age) had the exact same thing. I was able to help him through it.

My advice is to try and get her to recognize that the symptoms are nothing more than a mild anxiety attack. Have her focus on breathing techniques (fill up her stomach with the breathing) and build confidence over time in being able to recognize the symptoms, and deal with it without making it worse. It works. But, it takes time.

I was SURE I had something else wrong with me, even after visiting a cardiologist. Finally, I allowed myself to consider that, in fact, it was just an anxiety attack. Be patient.

Have her exercise will allow her to gain confidence in the fact that there is nothing wrong with her.

Good luck.

ETA: All of this is under the assumption that she has had a full workup by a cardiologist and the diagnosis is that this is a vasovagal response to anxiety.
This post was edited on 2/9/14 at 8:27 pm
Posted by Corkfather
Houston
Member since Sep 2007
19750 posts
Posted on 2/9/14 at 8:31 pm to
Prayers sent brother. I know that's gotta be hell, especially not knowing.
Posted by jose
Member since Feb 2009
29679 posts
Posted on 2/9/14 at 9:22 pm to
My dad vageled at a restaurant over the summer. We had both been on heavy diets to lose some weight and we were eating hamburgers and drinking beer that night. The doctors said it could have been from a number of things; one being the different food we were having, since he had been on the diet, or the super cold beer he had, or even the amount of stress he was under at work. But they lowered his BP meds and he has been fine ever since. Yea he almost fell out of his chair that night because he just passed out. Scary scary deal. I hope the best for your daughter man.
Posted by jdaute2
lafayette, LA
Member since Nov 2012
2226 posts
Posted on 2/9/14 at 9:35 pm to
P wave is the short rounded wave just before the sharp upstroke of the QRS complex. P wave is associated with atrial kick of left atrium which squeezes the rest of the blood out of the atrium and into the ventricle just before systole.
Posted by Pinetar
local watering hole
Member since Feb 2005
365 posts
Posted on 2/12/14 at 11:01 pm to
Saw Dr. Macecik for tilt table test today. Could not get her to pass-out during test but did find extremely irregular heart rate during test. Diagnosis is now Postural Orthostatic Tachycardia (POTS). While it's somewhat frightening, and there are a couple of pieces that are still a mystery, it's better than "We think it's vasovagal syncope. She'll grow out of it." Treatment protocol now is salt tablets (because she is not retaining fluids) and beta-blockers (kind of scary for a 14 year old). Very odd to have a cardiologist recommend increased salt intake. Also ordered a monitor to be worn for 30 days then follow up appointment. Dr. Macecik was awesome. He took a nervous and scared 14 year old girl and took the time to explain everything her so she could understand what was going on and answer all questions from her and the nervous parents. He didn't just blow her off and say "we're doing this because it's what the books call for." He actually walked her through the specifics as best he could and explained the reason for the treatment protocol. I'm glad we made some noise and pushed for the test rather than waiting for 2 weeks.

Thanks for all the feedback.
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