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Started By
Message
re: stage 4 liver cirrhosis
Posted on 9/22/22 at 11:43 pm to tigertrueAU
Posted on 9/22/22 at 11:43 pm to tigertrueAU
this is a major reason I don't drink. I come from a family with lots of alcoholic Irishmen.
0
Posted on 9/23/22 at 12:09 am to tigertrueAU
Alcohol-induced cirrhosis took my mother recently. Mid-50s. Same deal as most folks here, decades of heavy drinking did her in. She was admitted to the hospital, they did a few bypass surgeries to move the blood around, and she was okay for a while and we had some hope.
Then she showed signs of kidney failure after a few weeks. (Cirrhosis leading to kidney failure has a mortality rate north of 90%.) We knew there was virtually no shot of getting on a list but we tried anyway while the machines kept her going. The doctors denied her a transplant, I flew up to say goodbye, they detached the machines, and that was that.
I've never seen a human being look the way my mother did before she passed. It's seared into my brain. Quite a horrible sight.
Then she showed signs of kidney failure after a few weeks. (Cirrhosis leading to kidney failure has a mortality rate north of 90%.) We knew there was virtually no shot of getting on a list but we tried anyway while the machines kept her going. The doctors denied her a transplant, I flew up to say goodbye, they detached the machines, and that was that.
I've never seen a human being look the way my mother did before she passed. It's seared into my brain. Quite a horrible sight.
Posted on 9/23/22 at 12:20 am to messyjesse
It's one of the worst ways to go unfortunately. Ascites is absolutely miserable.
This post was edited on 9/23/22 at 12:21 am
Posted on 9/23/22 at 12:28 am to EarlyCuyler3
I have a friend I've not seen in a few years but keep up with him on social media. He's been a heavy drinker since college. He was very overweight until recently when he lost a bunch of it very rapidly. Now he looks emaciated everywhere but his belly, which is still huge. I'm guessing liver problems. He looks really unhealthy.
Posted on 9/23/22 at 12:46 am to tigertrueAU
I am helping my neighbor who has this.
Here are some things I have learned.
Before you read anything else start with this - there is hope - Newsweek magazine
LINK
Before and after - no transplant, just no more alcohol and a better diet and excersize! (This is not the person I am helping, it's just an inspiring story about somone else).
* A liver transplant, if you can get one, can save just about anyone. One person was so close to death he had already been measured for a burial suit, at the last minute he got a transplant. He's alive today, years later.
* Ochsner in New Orleans is probably one of the best places not just in America but in the world to get one done.
* More transplants would happen if there were enough livers.
* Consider a living donor transplant - that can be done in a month. You just need to have a relative (you? does he have kids who love him?) be willing to donate about 30 percent of their liver. Theirs will go back. For the "giver" (the donor) this is a very safe operation with something like a 99.9 percent success rate.
If you have 100 grand you can do one before Christmas in India or Turkey and don't knock it. They have specialist hospitals there that this is ALL they do, like a few a day, but they only do living donor transplants because Indians and Turks don't want wealthy Americans and Russian Oligarchs and Middle Easter oil barons flying in and taking their countrymens livers. YOU NEED A DONOR and that will probably have to be you or his kids.
Liver transplant - India - Save a life - be a donor
LINK
Turkey -
LINK
NOW - here is hope!
Man has liver transplant and then a few years later wins olympic medal
LINK
A year ago my brother was given six months
LINK
Here are two websites to go to for now
LINK
LINK
Good luck - it is NOT hopeless.
Oh and some doctors say with a RADICAL PERMANENT change in diet and habit - you won't ever even NEED a transplant.
LINK
Here are some things I have learned.
Before you read anything else start with this - there is hope - Newsweek magazine
LINK
Before and after - no transplant, just no more alcohol and a better diet and excersize! (This is not the person I am helping, it's just an inspiring story about somone else).
* A liver transplant, if you can get one, can save just about anyone. One person was so close to death he had already been measured for a burial suit, at the last minute he got a transplant. He's alive today, years later.
* Ochsner in New Orleans is probably one of the best places not just in America but in the world to get one done.
* More transplants would happen if there were enough livers.
* Consider a living donor transplant - that can be done in a month. You just need to have a relative (you? does he have kids who love him?) be willing to donate about 30 percent of their liver. Theirs will go back. For the "giver" (the donor) this is a very safe operation with something like a 99.9 percent success rate.
If you have 100 grand you can do one before Christmas in India or Turkey and don't knock it. They have specialist hospitals there that this is ALL they do, like a few a day, but they only do living donor transplants because Indians and Turks don't want wealthy Americans and Russian Oligarchs and Middle Easter oil barons flying in and taking their countrymens livers. YOU NEED A DONOR and that will probably have to be you or his kids.
Liver transplant - India - Save a life - be a donor
LINK
Turkey -
LINK
NOW - here is hope!
Man has liver transplant and then a few years later wins olympic medal
LINK
A year ago my brother was given six months
LINK
Here are two websites to go to for now
LINK
LINK
Good luck - it is NOT hopeless.
Oh and some doctors say with a RADICAL PERMANENT change in diet and habit - you won't ever even NEED a transplant.
LINK
This post was edited on 9/23/22 at 1:01 am
Posted on 9/23/22 at 12:52 am to Eurocat
Posted on 9/23/22 at 1:12 am to tigertrueAU
Dude I’m so sorry to hear that. Prayers sent 
Posted on 9/23/22 at 4:54 am to tgrbaitn08
Well what is it?
Posted on 9/23/22 at 5:42 am to tigertrueAU
Seen plenty of this in the hospital. I never drank, but if I did, it would surely make me want to tone it down substantially.
Posted on 9/23/22 at 6:04 am to James11111
quote:
This underscores the importance of blood work every 6 months; especially for people that drink more than 6 drinks daily.
or maybe don't do this.
No healthy person should have to get blood work every 6 months.
Posted on 9/23/22 at 6:04 am to Reykjavik_Tiger
quote:
If your brother is anywhere in the South, he needs to head to Ochsner in New Orleans. They have one of the best liver transplant teams in the country
I'll second this. My aunt needed a liver transplant years ago and was put on the list. Oschner called her one day and asked how soon she could be there so she dropped everything and went straight there. Living perfectly healthy ever since. It wasn't alcohol related and wasn't the same diagnosis as OP's brother, but may be worth the call if all other options are exhausted
Posted on 9/23/22 at 6:19 am to tigertrueAU
Yes, I do. I was diagnosed with that in Sept. 2019 and received a transplant in Jan. 2020. I was 39 at the time. My cause was alcohol. I've had zero issues since then and probably have better lab results than most people on this board. My advice to get to that point would be to do everything the doctors say to a T. Also, I found it helpful to keep my daily routine beforehand (go to work, bring kid to school, etc.). I was working all the way up until two days before I got the call. It kept me going when I really didn't feel like going anymore. Best of luck to your brother. People can live 30 years or more now with a transplant if they do what they're supposed to do. I had mine done at Tulane. I'm not sure where your brother is located, but if he is in Baton Rouge, I'd recommend getting an appointment with Dr. Fitzmorris at the Baton Rouge Clinic. He's a GI, but knows how to handle cirrhosis. Dude helped save my life there in the beginning.
This post was edited on 9/23/22 at 6:27 am
Posted on 9/23/22 at 6:30 am to tigertrueAU
I know of a 39 year old diagnosed with stage 4. She was a heavy vodka drinker for years. Her legs swelled up, she nearly died, but she stayed off the hard stuff and is still alive over 2 years later. She doesn’t drink anymore and had a rehab stint. Prayers to your brother.
Posted on 9/23/22 at 6:36 am to tgrbaitn08
quote:
Dude 44 is very young to be a serious drinker for years to already have stage 4 cirrhosis.
Just curious how much was he drinking and when did he start?
A few years back I lost a life long friend. Early 20s drank a 12 pack a day. Late 30s 12 pack and a bottle every day sometimes more. Hid it pretty well too. 45 major problems started, 47 rapid downhill decline. 51 dead.
BTW that older guy you know was he in the trucking business?
Posted on 9/23/22 at 7:11 am to tigertrueAU
To ask Dr:
1. Would he need a full transplant or could they remove part of the liver only?
2. Ask about Milk Thistsle or at least research it.
1. Would he need a full transplant or could they remove part of the liver only?
2. Ask about Milk Thistsle or at least research it.
Posted on 9/23/22 at 7:56 am to tigertrueAU
Sorry for your brother’s health problems. Will say a prayer for him!
Posted on 9/23/22 at 8:02 am to tigertrueAU
quote:
he’s been drinking 20 drinks a day for years, hardly eats.
I've been there. He's miserable. My prayers go out to him and all that love him.
I always drank too much but didn't drink like that until the last 2 years, even then it was a binging style of drinking. It's no way to live when alcohol has that kind of grip on you.
6+ years sober now.
This post was edited on 9/23/22 at 8:15 am
Posted on 9/23/22 at 8:11 am to pickle311
quote:
pickle311
Me and you have a very similar story. My dad was a serious alcoholic. Towards the end, he would turn bright yellow with jaundice, always bleeding from somewhere, and constantly in the ER and the DRs would just say there wasn’t anything they could do. His mind was gone but he just couldn’t put it down. I sometimes wonder if we had tried to get him help earlier when his mind was still sharper if it would’ve made a difference. He died at 51.
Posted on 9/23/22 at 8:38 am to tigertrueAU
That's what caused my dads death back in 98. Transplant is usually the best option. Luckily with liver they only need have a good one. Been told it will grow to a normal size. Best of luck.
Posted on 9/23/22 at 8:40 am to tigertrueAU
My aunt was diagnosed at 60 by her doctor. She was a heavy vodka drinker for most of her adult life. She had quit drinking about a year before diagnosis. Doctors told her she quit about 10 years too late. She died 6 months after diagnosis.
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