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Started By
Message
re: A blood test may detect Alzheimer's 16 years before symptoms
Posted on 1/23/19 at 7:47 am to Dorothy
Posted on 1/23/19 at 7:47 am to Dorothy
quote:
lived for a while before he died of a heart attack and never reached late stages of Alzheimer's.
Yea if I knew 16 years in advance bet your arse I’m about to indulge in bourbon and lots of red meat and hope it kills me first. At least I’ll enjoy myself
1
Posted on 1/23/19 at 7:48 am to foshizzle
quote:
Don't worry about that, you'd forget before too long.
16 years is a long time to contemplate your impending horrific situation, and those 16 years are only until the onset of symptoms. Progression of the disease varies and it can take years before you're to the point where you don't know whats going on around you.
Posted on 1/23/19 at 7:49 am to redstick13
quote:
Is this something people would really want to know about before the onset? I'm not sure I would.
My grandfather and grandmother both had this and both died before things got really really bad with it. Although my grandfather once went missing for almost 24 hours....we found him wandering around a Blockbuster video 4 hours from his town looking for my grandmother(he had gone to pick her up from the bus station after she traveled to Texas to visit family/friends).
Knowing this is in my genetics terrifies me. So yes...I would absolutely want to know. Like others said I could make lifestyle changes to possibly delay the progression of the disease. And prepare for the worst(get my affairs in order, etc).
I could do a video of myself displaying pictures of all my loved ones(or having them in the video) and telling myself who they are exactly. Tell myself all the important things about my life. Instruct my family to show it to me when things start getting bad.
Could also start researching the best nursing homes for people with Alzheimers. Have a list with contacts, etc for my loved ones. Make it easier for them if it came to having to make that choice to care for me.
This post was edited on 1/23/19 at 7:51 am
Posted on 1/23/19 at 7:49 am to deltaland
quote:
I’m about to indulge in bourbon and lots of red meat and hope it kills me first
Is not going to kill you.
Posted on 1/23/19 at 7:50 am to GetCocky11
quote:
Absolutely.
I'd move to a state with legal physician-assisted suicide, and after 16 years I'd go through with that.
This right here.
After watching a loved one battle this horrible disease, Id take some solace in knowing I was saving my loved ones from watching me waste away battling the latter stages of Alzheimer . Death is not easy, no matter how your day ends.
Posted on 1/23/19 at 7:50 am to TheCaterpillar
quote:
Also I’m sure there are pre-treatments or lifestyle changes
I can't remember exactly what the pre-treatments and lifestyle changes which were recommended to my grandfather when he was diagnosed, but they seemed to work. I can't say for a fact if it actually worked, but he stuck around mentally for a while longer than they were expecting. However, the baw who said he'd move to a state with dr. assisted suicide... yup. Would do the same after watching that.
Posted on 1/23/19 at 7:51 am to redstick13
What did that article say? I forgot.
Posted on 1/23/19 at 7:53 am to Loaner1231
@65, statically you have less than 10 years to live anyway.
Posted on 1/23/19 at 7:54 am to TheCaterpillar
quote:
I’m sure there are pre-treatments or lifestyle changes that could slow it down or lessen symptoms.
Improve your diet. Control your blood pressure. See your doctor regularly. These are simple changes that can improve your outcome so yes I would definitely want to know.
Posted on 1/23/19 at 8:04 am to lsunurse
quote:
My grandfather and grandmother both had this and both died before things got really really bad with it. Although my grandfather once went missing for almost 24 hours....we found him wandering around a Blockbuster video 4 hours from his town looking for my grandmother(he had gone to pick her up from the bus station after she traveled to Texas to visit family/friends).
Knowing this is in my genetics terrifies me. So yes...I would absolutely want to know. Like others said I could make lifestyle changes to possibly delay the progression of the disease. And prepare for the worst(get my affairs in order, etc).
I've only been around it twice. A great uncle on my mother's side and my step-dad's mother. Both went into the later stages and it was terrible for the loved ones taking care of them.
From that standpoint I could see how knowing would be beneficial for your loved ones. At what point to you instruct your loved ones to "pull the plug"? Can you even do this legally?
Posted on 1/23/19 at 8:06 am to redstick13
Short of death or total paralysis, I honestly cannot think of a more tragic disease/situation...to completely lose your mind and not remember who you are or who any of your loved ones are is absolutely scary.
Posted on 1/23/19 at 8:09 am to redstick13
You can significantly slow the onset of Alzheimer’s. This could change a lot of people’s lives. Most people that will get Alzheimer’s know it anyway, their parents had it
Posted on 1/23/19 at 8:16 am to Upperdecker
quote:
You can significantly slow the onset of Alzheimer’s.
I'm not doubting you but I've never seen or heard of any definitive way to slow the onset of the disease. You have any sources you can link? They'd be appreciated.
Posted on 1/23/19 at 8:18 am to redstick13
Can you say that again?
Posted on 1/23/19 at 8:19 am to redstick13
Absolutely I would want to know. If you know you have the protein in your blood, you could find ways to try and offset it by changes in your diet.
With enough research and the right diet, almost anything can be done. There's a lady somewhere I read about recently that was diagnosed with cancer and she made it her personal mission to learn as much about it as possible and completely changed her diet and CURED HERSELF after a few years. Of course, she had to eat like shite but after a while she grew to enjoy the new diet. I'll try and find the article and update this post when I find it.
It's a long shot but worth a shot.
LINK
With enough research and the right diet, almost anything can be done. There's a lady somewhere I read about recently that was diagnosed with cancer and she made it her personal mission to learn as much about it as possible and completely changed her diet and CURED HERSELF after a few years. Of course, she had to eat like shite but after a while she grew to enjoy the new diet. I'll try and find the article and update this post when I find it.
It's a long shot but worth a shot.
LINK
This post was edited on 1/23/19 at 8:28 am
Posted on 1/23/19 at 9:14 am to RATeamWannabe
quote:
This would screw you over in the life insurance policy pricing
You are already screwed from a pricing perspective if you don’t already have life insurance when you get the test done.
Posted on 1/23/19 at 9:16 am to JudgeHolden
quote:
Eat right, excercise, and stay active.
It's amazing what these simple things can do to change and extend the active years of your life.
Posted on 1/23/19 at 9:20 am to redstick13
If I get Alzheimer’s I don’t want a cure just let the Lord’s plan happen.
Posted on 1/23/19 at 9:22 am to redstick13
I think this is really big news. It sounds like with the identification of this protein marker, researchers may make progress toward a vaccine, or figure out where that protein originates and work toward to neutralizing it via gene therapy or some other medical therapy.
Posted on 1/23/19 at 9:29 am to JudgeHolden
quote:
Eat right, excercise, and stay active.
I recently found out my aunt has it. Concerned about my 72yo father getting because he now has a "first degree" relative (sibling) caused me to do quite a bit of research.
#1 thing to delay the onset was exercise. Followed by eating healthy and keeping the mind active. As far as a cure or vaccine, they really don't have anything positive in the works. Lots of "maybe's" but its a very difficult disease.
In my aunts case, she was genetically pre-disposed to having it....and likely my father is too. From 23andme testing she had both of the genes that are linked to Alzs (ApoE4). The chances of having both genes is about 2%. The chances of getting the disease is very high if you have both the genes.
The chances of my father getting it are high especially the older he gets. We could test him for the genes but honestly I don't want him to know if he has it. It seems like it would be an emotional roller coaster ride to find out you will almost certainly get it.
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